DANIEL FERGUSON LGMD FOUNDATION LTD

About

Small charity, established 2020. Purposes: health. Serves: children, young people, older people, families. Operates in: VIC.

Giving Philosophy

The foundation approaches giving with a commitment to empowering those living with LGMD to control their future, recognizing the unique challenges of a rare disease with limited research and clinical specialization. They prioritize funding high-quality research into the genetic basis, classification, and progression of LGMD, and support patient registries to gather crucial data. Additionally, they aim to provide direct support through employment programs, equipment development, social impact initiatives, and peer support, collaborating with clinicians and researchers globally to advance understanding and treatment.

Tips for Applicants

Applicants should align proposals with the foundation's core mission of improving the lives of those with LGMD through research, awareness, and direct support. Given their focus on high-quality research and collaboration, strong projects in these areas with clear outcomes for the LGMD community are likely to be favored. Demonstrating a clear understanding of LGMD as a rare disease and the specific needs of sufferers would be beneficial.

Notable Grants

• Funding to the Murdoch Children's Research Institute for a natural history study for children with limb girdle muscular dystrophy, led by Dr Ian Woodcock.

Financial History (2 years)