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Australian NPC Disease Foundation Incorporated

FoundationRegistryHPCABN 87767010514VIC
Relationships
13
Data Sources
2
Revenue
$385K
Tax Payable
Preview
Data as of: 17 June 2026
Found in 2 systemsACNC CharitiesFoundations

Giving Philosophy

The foundation is driven by a mission to change the narrative for those with Niemann-Pick disease, focusing on funding research for better treatments and a cure. It values community support, advocacy, and direct assistance to affected families, aiming to provide hope and connection.

Wealth Source:As a small not-for-profit organization, its wealth primarily comes from community fundraising, donations, and partnerships, rather than a large corporate endowment.

Tips for Applicants

Prospective applicants should demonstrate a direct alignment with Niemann-Pick disease research or specific support services for affected families in Australia. Emphasize impact on awareness, treatment, or quality of life for those with NPC/ASMD.

Financial History (7 years)

YearRevenueExpensesAssetsSurplus
2023$385K$377K$290K$8K
2022$257K$205K$270K$52K
2021$226K$264K$196K$-38,131
2020$189K$136K$228K$53K
2019$233K$139K$151K$95K
2018$64K$60K$69K$3K
2017$44K$10K$69K$34K
0
Grants Given (AU)
$79K
0
Volunteers
12
Donations Received
$214K

Community Evidence

External Evidence

Identity

GS ID
AU-ABN-87767010514
ABN
87767010514
Financial Year
2023

Focus Areas

Geography
AU-VIC
Target Recipients
youthdisability
Beneficiaries
AdultsChildrenOverseasEarly ChildhoodFamiliesFemalesMalesChronic IllnessDisabilityYouth

Board & Leadership (13)

  • Rathor Girish
    board member
  • DEANNA CARPINO
    officeholder
  • Sarvesh Soni
    officeholder
  • Alexandre Domingue
    other
  • Amanda (Mandy) Whitechurch
    other
  • ANNA CALCAGNO
    other
  • Carly Heath
    other
  • Gia An La
    other
  • Marian Shoebridge
    other
  • Nathalia Castro
    other
  • Philippa Johnston
    other
  • Vince Demarte
    other
  • Felicity Munro
    secretary

Financials

Revenue
$385K
Assets
$290K

Method

Match Confidence
registry
Cross-references
2 datasets
Match Key
ABN
Relationships
13

Matched by Australian Business Number (ABN) — high confidence. This entity was found across multiple government datasets using the same ABN.

Data Sources

ACNCFoundations

JusticeHub

External Link

This entity is also tracked in JusticeHub with 0 interventions and 0 evidence records.

External ecosystem profile linked from GrantScope for additional context. JusticeHub content is maintained separately.

View on JusticeHub

Location Intelligence

Postcode
3672
Locality
BENALLA
Remoteness
Inner Regional Australia
SEIFA Disadvantage
Decile 3/10
LGA
Benalla
SA2 Region
Benalla
Entities in Area
155

This entity is in a postcode ranked in the most disadvantaged 30% nationally (SEIFA Index of Relative Socio-economic Disadvantage, ABS 2021 Census).

View on Power Map

Disability Market Context

NDIS Layer
State Providers
3,026
Thin Districts
2
Very Thin
0
Local Alternatives
0
0 community-controlled orgs in postcode

This organisation shows disability-related delivery signals. The strategic question is whether it sits inside a resilient market, a thin market, or a captured market where large providers take most of the money and local alternatives are scarce.

Thinnest Districts In VIC
Mallee95 providers
Mallee98 providers
Outer Gippsland133 providers
Captured Markets
Mallee88%
Western District87%
Outer Gippsland83%
Inner Gippsland75%