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FSHD Global Research Foundation Limited

FoundationRegistryHPCABN 79128037614NSW
Relationships
71
Data Sources
1
Revenue
$1.5M
Tax Payable
Preview
Data as of: 18 June 2026
Found in 2 systemsACNC CharitiesFoundations

Giving Philosophy

The foundation prioritizes medical research and support services for individuals affected by FSHD, a rare genetic condition. It appears to take a disease-specific approach, focusing resources on understanding and addressing this particular muscular dystrophy while supporting affected individuals and their families across multiple life stages.

Wealth Source:Corporate foundation structure, likely established through corporate or private sector contributions focused on FSHD research and patient support.

Tips for Applicants

Applicants should demonstrate clear alignment with FSHD research, patient care, or support services. Proposals addressing the needs of adults with this specific muscular dystrophy condition, particularly in underserved regional areas, are likely to resonate with this foundation's mission.

Financial History (7 years)

YearRevenueExpensesAssetsSurplus
2023$1.5M$1.2M$1.9M$304K
2022$758K$2.5M$1.6M$-1,699,404
2021$556K$757K$3.3M$-200,732
2020$788K$1.0M$3.5M$-258,250
2019$1.5M$1.5M$3.8M$17K
2018$1.6M$1.7M$3.8M$-36,884
2017$1.7M$1.9M$3.8M$-157,421
0
Grants Given (AU)
$55K
Staff (FTE)
1.8
Volunteers
25
Donations Received
$605K

Community Evidence

External Evidence

Identity

GS ID
AU-ABN-79128037614
ABN
79128037614
Sector
health
Financial Year
2023

Focus Areas

Themes
healthindigenous
Geography
AU-ACTAU-NSWAU-QLDAU-VICAU-WA
Target Recipients
communityyouthageddisadvantageddisabilityrural_remoteindigenous
Purposes
Health
Beneficiaries
First NationsAdultsAgedChildrenOverseasEarly ChildhoodFamiliesFemalesFinancially DisadvantagedGeneral CommunityMalesOtherChronic IllnessDisabilityRural & RemoteYouth

Financials

Revenue
$1.5M
Assets
$1.9M

Method

Match Confidence
registry
Cross-references
1 dataset
Match Key
ABN
Relationships
71

Matched by Australian Business Number (ABN) — high confidence. This entity was found across multiple government datasets using the same ABN.

Data Sources

ACNC

JusticeHub

External Link

This entity is also tracked in JusticeHub with 0 interventions and 0 evidence records.

External ecosystem profile linked from GrantScope for additional context. JusticeHub content is maintained separately.

View on JusticeHub

Location Intelligence

Postcode
2000
Locality
Sydney (North) - Millers Point
Remoteness
Major Cities of Australia
SEIFA Disadvantage
Decile 4/10
LGA
Sydney
Entities in Area
10,078
View on Power Map

Disability Market Context

NDIS Layer
State Providers
4,591
Thin Districts
2
Very Thin
1
Local Alternatives
4
66 community-controlled orgs in postcode

This organisation shows disability-related delivery signals. The strategic question is whether it sits inside a resilient market, a thin market, or a captured market where large providers take most of the money and local alternatives are scarce.

Thinnest Districts In NSW
Far West49 providers
Far West51 providers
Southern NSW242 providers
Captured Markets
Far West95%
Mid North Coast89%
Western NSW75%
Murrumbidgee71%